Monday, February 22, 2010

We had a great weekend. We went out to eat with some friends and sat around the rest of the night laughing!! The next night, we grilled out with the Bunkers and Skywalker ended up spending the night. Sunday’s are so much brighter around our house. Our church called a new pastor about a month ago. He just lifts you up so well in God’s word.

I think the steroids have increased my appetite a little. I can’t really tell if they have helped a lot. One day I wake up and feel great and then by that night I feel tight. I feel like now I have more congestion and I know I am coughing harder. It has only been a month since I got out of the hospital. I am NOT ready to return!!! My O2 levels are great! It has started raining and that even makes my breathing worse. I am so ready for some warm summer weather.

Lord grant me the serenity to accept the things I cannot change, the courage to change the things I can and the wisdom to know the difference... trust...

Friday, February 19, 2010

My Favorite Song!!

This song brings me to tears each time I hear it. How powerful the words are.!!!

Busy..but FUN!

We have been so busy…or should I say just having fun!! We had about 5 inches of snow last Friday. We stayed out all day throwing snowballs and snowboarding behind the 4-wheeler. There were way too may kids to count. This neighborhood is a kid drop off zone. I wouldn’t have it any other way. I always told my husband that I wanted Skywalker"s friends to come to his house instead of him always wanting to go somewhere…So far…that has been accomplished!

On Saturday, we had Skywalkers 9th birthday party! He invited 9 boys to go play Lazertag. It was 2 hours of the most fun.  He is really into sports right now. I think dad enjoyed it as much as the boys.

This past week has been crazy. I really started feeling tight and short of breath. I tried doing extra breathing treatments but really didn’t get much relief. I called UAB and they called me in a steroid dose pack. It is  a very low dose so I decided to take it. I HATE steroids. I am on my 3rd day and I am feeling a little better not as short of breath. I did get back on the treadmill and walked 10 minutes. I have lots more energy…THANKS to the steroids. I even felt like getting in the tanning bed.!!! I always feel better when I am not SNOW white….

G.I. Joe had to be away from home this week because of work. We were so glad to see him back. I sure didn’t get lots of hugs and love….he came home SICK…ug .ug.. He thinks he has a sinus infection…oh..just want I need…so he is staying a feet away…

Friday, February 5, 2010

HAPPY day...

I woke up this morning being a mom to a birthday boy. Our little gift from God turns 9 today.  When I married G.I. Joe, I really thought that I didn't  want children.  I think I had just been told so many times that it was so hard for women with CF to get pregnant. I had also been told that it would start a decline in my health along with many other negatives. I thought that if I said many times over and over that I didn't want children then I would start believing it.  After 5 years of a wonderful marriage, my heart just longed for a child.  We prayed for a miracle, and for God to bless us with a child.  It was not an easy process but people with CF have never been known to give up! After 32 longs weeks, our bundle of joy arrived HEALTHY!!!!! These have been wonderful years.  I tuck him in each night with a hug and a kiss along with saying our prayers.  Each night, I go back in his room after he falls asleep and kiss him on his forehead.  Each night,  I look to God and thank him for allowing me to be a mom!! He is the beat in my heart and the light in my day.  He has the sweetest hugs and kisses.  I know that because I have CF, I realized how special each day is.  I can honestly say that I live each day as my last.  My heart is so open to my son.  As I am writing this, he has asked me to come make cookies with I must end this and get those cookies going!!!
I love being a MOM and WIFE!!!  It sure is easy when you have the best son and husband in the world!!

Thursday, February 4, 2010


I thought I would post this for those interested.  I am in a CF Yahoo group and others were wanting information on this.  The eFlow® SCF is available with a prescription exclusively through The Respiratory Disease Network (RDN), a group of specialty pharmacies created to better address the specific needs of people affected by CF. Call 1-888-335-6946.  I called the Georgia office.  They were very friendly and very helpful.

*This is no cost for the eFlow®
*They will supply it to you ONLY if you order your certain inhaled medications from them
*You CANNOT use TOBI in this must be a preservative free unit dosed tobramycin

The eFlow® SCF technology platform combines two key nebulization principles - a high percentage of the delivered dose within the respirable range and a high flow rate - to significantly reduce nebulization times.

Wednesday, February 3, 2010

If I Were

If I were a month, I would be June.

If I were a day of the week, I would be Saturday.

If I were a time of the day, I would be 5:00 pm.

If I were a planet, I would be Earth.

If I were a sea animal, I would be a dolphin.

If I were a direction, I would be Southeast.

If I were a piece of furniture, I would be a Lazy boy chair.

If I were a liquid, I would be Gatorade.

If I were a gemstone, I would be a diamond.

If I were a tree, I would be a Dogwood.

If I were a tool, I would be a hammer.

If I were a flower, I would be a Gerber daisy.

If I were a kind of weather, I would be hot.

If I were a musical instrument, I would be a saxaphone.

If I were a color, I would be bright blue.

If I were an emotion, I would be faith.

If I were a fruit, I would be a orange.

If I were a sound, I would be funny.

If I were an element, I would be oxygen.

If I were a car, I would be a Hummer.

If I were a food, I would be a crab leg.

If I were a place, I would be the beach.

If I were a material, I would be  terry cloth.

If I were a taste, I would be salty.

If I was a scent, I would be fruity.

If I were an object, I would be a laying out chair.

If I were a body part, I would be a lip.

If I were a facial expression, I would be a smile.

If I were a song, I would be loud.

If I were a pair of shoes, I would be a flip flops.

What would you be?

Monday, February 1, 2010

Thoughts of Emily

I believe I am not feeling as short of breath right now. I did an extra breathing treatment around lunch. I know this may be crazy, but I am beginning to think my pfts were lower because I took the H1N1 shot. That is just an idea that I conjured up. I told G.I. Joe about my exercise plan, so I am hoping he will help me stay true to it. Skywalker came in from school with homework and he also has basketball practice tonight. Skywalker's request for supper >>TACOS<< I use to really hate to cook, but when Skywalker started asking for special request my thought about this changed. It makes me feel like a great mom when he tells me how good supper is. He always gets up from the table and gives the cook a sweet...(see now why I love to cook!!) G. I. Joe is down the street helping our new pastor hang blinds in their home.

This afternoon, I watched Emily Mulkey's funeral via web cast. It was a beautiful service. I only knew of Emily through her blog and I encourage others to read it. She had such faith in God. My prayer today is to become more like Emily. I need to be more passionate for Christ, more driven for my savior. I pray that God with give me the opportunity to lead others to worship him.

Psalm 71:15
My mouth shall tell of Your righteousness and of Your salvation all day long; For I do not know the sum of them.