Saturday, March 19, 2011

Spring Break

We made it home from a week of sun, sand, and a lot of fun!  The weather was a little cool and the water was a little colder.  It did not bother  Skywalker at all.  He swam all day and then also in the heated pool at night.  I enjoyed just sitting in the sun on the beach watching G.I. Joe and Skywalker playing football.  The food each night was just wonderful, but the all you could eat crab legs was my favorite....well, the all you could eat boiled shrimp was a hit... too!!!!

I still am a little short of breath when I get in a hurry to do something.  I go to transplant clinic (1st ever visit)  and CF clinic the end of the month.  I am hoping my PFT's have gotten better and not worse.

We start baseball this next week so I will be a mom on the go!!  I LOVE baseball season.  I am counting the days till school is out so Skywalker and I can be together all  day.

We have church in the morning and then Monday.. Skywalker is back to school.  G.I. Joe is off work and taking me to the ENT for a follow-up.  After that, we have a TON of grocery shopping to do...

Wednesday, March 9, 2011

Back to the House

I came home from the hospital on Sunday! My PFT's were much better.  So much better that I was even shocked a little. (56/39) I think his is pretty much my standard now when I am feeling pretty good.  I have been laying in the bed for 3 weeks.  Maybe I can get them up a little more before I go to my clinic visit the end of this month.

 I could not wait to get home and get in my shower and my bed!   It seems like forever since I have been home.  We have not had a since of normalcy around our house since the beginning of January.  I have either been in the hospital or G.I. Joe has been away from home with his job.  But needless to say, we are home, happy, and ready to make up for some lost time!
I cancelled the Orland trip last week and now we are headed to Destin for spring break!  We are all excited and Skywalker already has his luggage out on his bed.

Restlessness and impatience change nothing except our peace and joy. Peace does not dwell in outward things, but in the heart prepared to wait trustfully and quietly on Him who has all things safely in his hands.

Monday, March 7, 2011

Soul Mates

OK...So I decided to answer questions about G.I. Joe and our relationship.

How did you and your honey meet?
We ran into each other about 3 times before we actually talked.  I think we just stared at each other a lot.  We met at house fire through a mutual friend.  I asked him what had happened...and his first words to me.."Looks like something got pretty hot!"  So, I walked off thinking..not so sure I want to talk to him again.  But, he could not resist and he called that night and we have never stopped talking to each other.  When we returned home from our first date, I told my mom that night... "I'm going to marry him!!"

What is the thing that you love most about your marriage?
He is the lover of my soul.  He knows every little thing...flaws and all and still loves me.  He's my best friend.  He's got my back!  He's my number one fan.  He's the one person who I can completely be myself with, and that to me is the biggest gift in the whole world.  It's what marriage should be.

How long have you been married?
It will be 16 years in May.

About your husband?
He is the perfect fit for me.  He's all about the details...I'm not.  He works hard for us.  He loves our son  with all his heart.  He loves the Lord and strives to be the spiritual head of the home.  He cracks me up.  He has the most awesome hugs.   We view the world in the same way.  So fun to be able to see things eye to eye.  He's romantic and always makes a big deal about spoiling me for Christmas, Valentine's, our Anniversary etc...  And this is probably my favorite thing...he loves to surprise me to the extreme.  I love that he loves with everything in him.   He doesn't just coast through life never appreciating it.  He holds things close and knows that life is short.  He's my man and I don't know what I would do without him.  Oh and added bonus...he's pretty darn HOT too!  HE COMPLETES ME!

The lord has blessed me with a wonderful man.  My desire is to love & respect him and to raise Jace to see our love acted out on a daily basis.  
If you've been married for 15 years & maybe forgot all those wonderful things he does that drew you to him in the first place.  Do you remember when you first got engaged? How for days afterward, regardless of what you were wearing, you walked like a princess because the ring on your hand showed that you were well loved.... choose to remember that... Remind him of those things that you love about him... praise him in front of your children and to your friends...try to go to bed at the same time he does and  above all remember that tomorrow is not a promise, it's a luxurious gift that if it's given must be received with a grateful heart, appreciated & lived fully.

we lived happily ever after!!!

Saturday, March 5, 2011

Oh..The Love for my Child

Kids don’t remember what you try to teach them. 
They remember what you are.
— Jim Henson 

There is no higher calling in my life or greater joy in my heart than raising my child.
Lord, fill me with your love and grace and mercy and compassion and gentleness.
Give me your patience and kindness.
Help me to be slow to anger and quick to forgive.
Teach me to depend on you for all my needs.
Give me a grateful heart so that his heart is filled with thanksgiving.
Let him see me rely on your provision.
Let him see me wait on you.
Let him see me trust in you for my friendships so that he can trust in you for his.
Let him see me seeking you so that he might seek you also.
Help me to always be mindful that he is watching me.
It is by your grace...
that I raise him and teach him and show him the way.
It is by your grace....
that he follow you all of his days.
It is by your grace alone.

I love you so much, Jace.  Your smile is so sweet.  Your laugh is so loud.
Your touch is so soft.  Your hugs are so tight.
You make me proud everyday.  You make my heart full
of joy.  You are a gift from God.  
You are my EVERYTHING!

Friday, March 4, 2011

The Days Roll By..

Day 19..and the days are getting slower!
I guess call it beach fever or spring break fever, but {{GOLLY}} do I have a BIG bad case of it.!! We have plans to go to Orlando and stay at the Nick Hotel for the week.  Skywalker has now decided he doesn't want to go that far and that he wants to go to Destin.  WOW..hard to believe, but he is my child and I LOVE complaints here...and G.I. Joe said he is just the driver and just tell him where to go...So now I plan on spending the day looking for somewhere to stay for the week.  We have tons we can do in feels like home when we are there.  I keep telling G.I. Joe that I would love to move there.  He has 2 more years with his job and I think he would pack and go also.  Skywalker would be in the truck ready to leave if we told him.  He is part fish and as long as we were close to the water, he would love it.

How lucky am I to have 2 of the greatest guys in my life!!  It doesn't matter where we are...what we long as we are together...having fun..laughing..smiling..and loving each other.

Wednesday, March 2, 2011

A long Club Med stay

So.. I should just have an UPDATE button.  It  would be much easier to do this more often, but where does my time go?

Well, I have now been in the hospital 2.5 weeks.  I have about a 1/2 of a week left.  This has been a long stay for me, but boy was I sick when I got here.  I had a sinus infection for a week and the stomach virus at home before I caved in and got admitted to Club Med.  After two weeks, I finally did my pft's (42/32) and they were in the bottom of the bucket somewhere.  I plan on doing them the end of this week, so I am praying for a bigger and stronger number.

This visit stirred a lot of questions about transplant.  We have talked a little about it and so I went to a pre-evaluation transplant class the other day.  It was full of helpful information, but  {{{GOSH}}} not so sure I am ready for this.  I do know I hate being "this" sick...and really I have farther to fall, but I would be scared too.  I keep thinking if I go and transplant before i get "TOO SICK" then it will help me recover sooner and stronger.  But, then I selling myself short on the lungs I have?? Could I get more out of them?

My CF friend Ashley got new lungs yesterday.!! Praise God.  I had just talked to her the day before and she told me she had been listed for 2 years.  She was ready for a family and to start her life.  Well, I can tell you...God was listening in on the conversation and what a blessing!!  

I am really missing Skywalker and G.I.Joe this week.  But, I have received some of the sweetest text messages from them.  It makes my heart smile :)  At night, Skywalker has decided if he will stay on the phone and talk, then he doesn't have to go to bed on time.  So...I am a sucker and we talk!!  We have plans for an awesome Spring Break.  Boy, we need it...lots of us time....hugs...kisses...laughs...and smiles!!! That is better than any dose of medicine for me.

Here lately I have cried out to Jesus so ofter...not always for what upsets me, though...I find myself "thanking" him for my life, my family, and my doctors.  So what if I have CF, what an amazing life it has given me....
NO love greater than the CROSS!!!

I have discovered that patience is not the ability to wait, but the ability to keep a good attitude while waiting." 
-Joyce Meyer

 I have so much and have beaten this disease in so many ways already...but I want more.

This is what I look forward to...

Maybe growing old is overrated? I still want it. Lord knows...we don't always get what we want. I guess there is always HOPE...